Eric and Tarah O’Sullivan formed the Drake Rayden Foundation after their youngest son, Drake Rayden, and subsequently their youngest daughter, Vivian Faye, were both diagnosed with an extremely rare, terminal metabolic disease called NonKetotic Hyperglycinemia, or NKH.
Since NKH is such a rare genetic disease with only around 500 cases, government funding is very limited. This means the burden of raising funds for research falls to the families of these medically fragile children.
The Drake Rayden Foundation raises awareness for NKH, fights for better treatment, and supports desperately needed research to change the lives of children around the world living with NKH.
2607 Woodruff Road, Suite E. PMB 352
Simpsonville, SC 29681
6 Goodman Court
Greer, SC 29651
There are opportunities of all sizes available from corporate to individual partners, and event volunteer positions. Any amount of support you can offer is greatly appreciated. We truly thank you for your prayers and support.