Today is my birthday, and as Drake and Vivian's mother, I find myself asking for the same thing every year. "Father, please..."

I don't know if I have ever been truly grateful for time. When you are young, all you think about is growing older. When you are older...

The hours after Vivian's birth was a bit of a blur. We had decided to induce her around 39 weeks and three days due to me being dilated,...

I typed in my search bar early this morning.. "What does the name Vivian mean in the Bible?".... The search populated and it caught me...

I avoided this day for weeks... I wanted so badly for him to be able to communicate, to show us something, to PROVE he was in there. In...

Thanksgiving was this past week and like many of you, we are still recovering from all the wonderful food. This time of year is so fun...

Yesterday I was sitting with our PT discussing some pretty severe issues we are seeing with Drake’s scoliosis and his poor little legs. ...

Ever heard the saying “don’t cry over spilt milk”... Well, last night I cried over hamburger meat. Before you try to guess, no I am not...

GOD HAD EQUIPPED US FOR THE JOURNEY HE SET BEFORE US We first met the Burgess family a few years ago when our paths crossed at church....

We are very grateful for the opportunity to speak with Jack and Demarcus on Your Carolina to help spread awareness for Drake and our...

Update July 1st, 2019 Drake is finally starting to get back to his baseline for seizures, thank Jesus. The last few weeks have been...

WE ARE SO CLOSE, WITH ANOTHER MATCH TODAY!!

We are SO CLOSE!! Just $10 more dollars could help us get UNDER $10,000 of our $70,000 to start our Gene Therapy! Please donate today!

Please watch our video to check out our latest updates.

We are blown away and can't thank you enough for all the shares and the donations. Please KEEP SHARING! It is working!! WE HAVE TO MAKE...

Please watch our video to see our exciting news about an amazing opportunity God has opened up for Drake, and other children suffering...

We want to say a massive thank you to ALL the realtors at Ponce Realty Group. This amazing, amazing group of realtors collectively...

In the past ten days we have lost two children to NKH. Two beautiful children ….gone…to a preventable death…… Two families have suffered...

The Drake Rayden Foundation fights for better treatment for NKH through raising funds and encouraging research. We also want to be a...

We wanted to update on Drake’s progress and the foundation’s direction. First, let me say… thank you…..thank you for all your prayers,...

Our kids, and their friends in the neighborhood, have wanted to do something to have their own "fundraiser" for Drake... I came home from...