The First 24
The hours after Vivian's birth was a bit of a blur. We had decided to induce her around 39 weeks and three days due to me being dilated,...
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Stay In The Know
Tarah OSullivan
Aug 214 min read
Vivian...alive; lively, bubbling with life
I typed in my search bar early this morning.. "What does the name Vivian mean in the Bible?".... The search populated and it caught me...
302 views
Tarah OSullivan
Aug 126 min read
Failing FORWARD...
I avoided this day for weeks... I wanted so badly for him to be able to communicate, to show us something, to PROVE he was in there. In...
1,165 views
Tarah OSullivan
Nov 27, 20236 min read
Why Not Me?
Thanksgiving was this past week and like many of you, we are still recovering from all the wonderful food. This time of year is so fun...
452 views
Tarah OSullivan
Dec 8, 20225 min read
Life is but a Vapor...
Yesterday I was sitting with our PT discussing some pretty severe issues we are seeing with Drake’s scoliosis and his poor little legs. ...
1,078 views
Tarah OSullivan
Dec 5, 20226 min read
The Crippled Lamb and Crying Over Hamburger Meat
Ever heard the saying “don’t cry over spilt milk”... Well, last night I cried over hamburger meat. Before you try to guess, no I am not...
324 views
Tarah OSullivan
May 19, 20202 min read
Lifeline Partners Spotlight: THE BURGESS FAMILY
GOD HAD EQUIPPED US FOR THE JOURNEY HE SET BEFORE US We first met the Burgess family a few years ago when our paths crossed at church....
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Tarah OSullivan
Jul 1, 20191 min read
Your Carolina with Jack and Megan Apperance
We are very grateful for the opportunity to speak with Jack and Demarcus on Your Carolina to help spread awareness for Drake and our...
207 views
Tarah OSullivan
Jul 1, 20193 min read
July 1st Update
Update July 1st, 2019 Drake is finally starting to get back to his baseline for seizures, thank Jesus. The last few weeks have been...
257 views
Tarah OSullivan
May 30, 20191 min read
May 30th Update
WE ARE SO CLOSE, WITH ANOTHER MATCH TODAY!!
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Tarah OSullivan
May 29, 20191 min read
May 29th UPDATE
We are SO CLOSE!! Just $10 more dollars could help us get UNDER $10,000 of our $70,000 to start our Gene Therapy! Please donate today!
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Tarah OSullivan
May 24, 20191 min read
May 24th UPDATE
Please watch our video to check out our latest updates.
18 views
Tarah OSullivan
May 21, 20191 min read
20% in the FIRST 24 HOURS!!!
We are blown away and can't thank you enough for all the shares and the donations. Please KEEP SHARING! It is working!! WE HAVE TO MAKE...
27 views
Tarah OSullivan
May 20, 20191 min read
TODAY IS THE DAY!
Please watch our video to see our exciting news about an amazing opportunity God has opened up for Drake, and other children suffering...
11 views
Tarah OSullivan
Aug 29, 20181 min read
Ponce Realty Group
We want to say a massive thank you to ALL the realtors at Ponce Realty Group. This amazing, amazing group of realtors collectively...
20 views
Tarah OSullivan
Jul 24, 20182 min read
Faith, Hope, Cure for NKH
In the past ten days we have lost two children to NKH. Two beautiful children ….gone…to a preventable death…… Two families have suffered...
94 views
Tarah OSullivan
May 16, 20182 min read
DRF Cares
The Drake Rayden Foundation fights for better treatment for NKH through raising funds and encouraging research. We also want to be a...
35 views
Tarah OSullivan
Apr 29, 20185 min read
Future Plans
We wanted to update on Drake’s progress and the foundation’s direction. First, let me say… thank you…..thank you for all your prayers,...
76 views
Tarah OSullivan
Apr 18, 20181 min read
Lemonade Stands
Our kids, and their friends in the neighborhood, have wanted to do something to have their own "fundraiser" for Drake... I came home from...
31 views
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